Personalisation

2 broad dimentions concerned with involving service users in the delivery of service

Contributing to social care planning and development
Participation in planning and evaluating their own service

Bias? Sometimes offered in token gesture

Practise seen as a joint project

Beresford, P. and Croft, S. (2002) Involving Service Users in Managing Citizenship, Access and Support, in Reynolds, J. et al. The Managing Care Reader, London, Rutledge.

Kirsty:

Somewhat new as a concept. Previously the opinions of those accessing services, experiencing the situation themselves, were not recognised as the experts of themselves they in far are.


Niki:

The philosophy of personalisation stems from person centred planning and has a multi layered framework of political, financial and cultural contexts.
Dementia is an increasing health condition in Britain that is escalated by people living longer and an increase in early diagnosis. This leads to an increased demand to keep people in their own homes due to health and social care resources.

Cognitive effects

Difficulty in recognising people and places
Remembering pin & phone numbers
Remembering where they live and difficulty in finding their way home
Poor short term memory
Easily confused and muddled
Poor concentration, attention and easily distracted
Unable to think clearly or problem solve
Difficulty in learning new things

Functional effects

Difficulty in completing the everyday tasks and activities of independent living
Difficulty in handling and managing money
Difficulty in keeping safe with appliances e.g. gas and electric cooking, ironing, boiling kettles etc.
Difficulty in knowing what to do next especially if out of routine
Problems following social cues
Word finding difficulty or loss of verbal skills
Slower reactions


Behavioural effects

Loss of social skills
Over active response to changes or stimuli in the environment
Repetitive behaviour patterns
Physical or verbal aggression
Inappropriate responses or behaviours

Psychological effects

Irritability
Mood swings
Frustration and anger with self and others
Changes in personality
Anxiety
Loss of motivation
Depression

career force, 2015

young people = likely to be a large underestimation due to how the data is reliant upon referrals from services.

Dementia UK report, 2007, Alzheimers society, London.

Family carers of people with dementia save the UK over £6 billion a year.

The financial cost of dementia to the UK is over £17 billion a year.

Dementia UK report, 2007, Alzheimers society, London.

Key recommendations and conclusions

The new data has shown that the current burden and future impact of the dementia epidemic has been underestimated, particularly for the Asia East and Sub-Saharan African regions. The global burden will soon shift to poorer countries
Our best estimates show that 10% of dementia cases may be avoided by improvements in public health. Campaigns that target smoking, underactivity, obesity, hypertension and diabetes should be prioritised as well as education and other cognitive enhancement
The current economic cost of dementia is $604 billion annually (2010). These costs will escalate at least proportionally with numbers affected, particularly in low and middle income countries
Research must be a global priority if we are to improve the quality and coverage of care, find treatments that alter the course of the disease and identify more options for prevention
Investment into a search for a cure must be balanced with initiatives to improve access to evidence based packages of care
Lessons can be drawn from the HIV epidemic regarding the relationship between success in research and the presence of well-established care systems, access to diagnostic technologies and drug therapies in low and middle income countries and better implementation of ‘global trials’
Dementia must be declared a public health priority by initiating national debates regarding the future provision for long term care. So far, only 13 out of 193 WHO countries have national dementia plans in place.
All countries, not just those in the G8, must commit to comprehensive plans for collaborative action. International cooperation will be essential and there is a need for a global action plan between governments, industry and non-profit organisations like Alzheimer associations


Alzheimers Disease International, 2013, Policy Brief for Heads of Government: The Global Impact of Dementia 2013–2050, Alzheimer’s Disease International (ADI), London.

spearheaded the personalisation movement by embracing the social model of disability. Based on four key principles of rights, choice, independence and inclusion.

the first legislative move to shape the direction of personalised support and funding to try and meet the individuals’ needs.

The care and support white paper sets out the vision for a reformed care and support system. The new system will:

1)focus on people’s wellbeing and support them to stay independent for as long as possible

2)introduce greater national consistency in access to care and support

3)provide better information to help people make choices about their care
give people more control over their care

4) improve support for carers
improve the quality of care and support
improve integration of different services

career force, 2015, http://ilearn.careerforce.org.nz/mod/book/view.php?id=256&chapterid=181 [accessed 02-03-15]

Dementia UK report, 2007, Alzheimers society, London.

Alzheimers Disease International, 2013, Policy Brief for Heads of Government: The Global Impact of Dementia 2013–2050, Alzheimer’s Disease International (ADI), London.

Beresford, P. and Croft, S. (2202) Involving Service Users in Managing Citizenship, Access and Support, in Reynolds, J. et al. The Managing Care Reader, London, Rutledge.