We can't keep thinking that another disease awareness website we build will stand a chance against patient groups, societies and existing support networks. What do we have that is so new?
How do you access these resources? Are you getting answers through social shared channels? Is that question occurring due to where you are? Are you on the move?
There isn't a day without phone calls and emails with people asking myself or the team " when would be good to..." or "this Friday I'd appreciate 30 minutes to show you..."